HAELSA™ · Health Data Agency

Somewhere right now, a person cannot tell their doctor their complete medical story.

Not because they forgot. Because the story of their health is scattered — across old hospital systems, outdated apps, and obsolete paperwork. HAELSA was built to change that.

HIPAA GDPR HL7 FHIR 21st Century Cures Patent Pending
795,000
Americans die or are permanently disabled by preventable medical errors every year
Newman-Toker, 2024
$220B
in United States medical debt, touching roughly 100 million people
Kaiser Family Foundation & Peterson, 2024
65%
of physicians say scattered records are their number one daily problem
American Medical Association, 2025
$33.6B
projected market for consumer-generated health data by 2034 — consumers currently see almost none of it
Insight Ace Analytic, 2025

Chapter 01

The Problem

Health records are owned by institutions, not by people. They are locked inside systems that do not talk to each other. So when a consumer or patient walks into a new doctor's office, an urgent care clinic, or an emergency room, they arrive without their own information. The doctor has to start from zero.

That gap is not just inconvenient. It is where preventable errors happen, where costs spiral, and where an entire data economy quietly profits from consumer and patient information without paying them a cent.

01

The Bankruptcy

A hospital stay without a full medical history means repeat tests, duplicate scans, and bills that spiral. Medical debt is the leading cause of personal bankruptcy in the US, touching roughly 100 million people.

Kaiser Family Foundation & Peterson, 2024
02

The Missed Warning Sign

A critical allergy or an old scan sits in a different hospital's system — and the emergency room doctor never sees it. Incomplete histories contribute to death or permanent disability for hundreds of thousands of Americans every year.

Newman-Toker, 2024
03

The Breach

In 2023, hackers exposed the genetic data of millions of 23andMe users. Unlike a password, genetic data cannot be reset. Health data scattered across dozens of systems is a growing target.

04

The Clipboard, Again

Same questions, different clipboard. Consumers and patients retype their medical history at every appointment — wasting time, and giving every visit a fresh chance for a critical detail to get left out.

05

The Sale

Data brokers buy and sell health information every day — sometimes very sensitive records. The person that data belongs to sees zero dollars from it.

06

The Emergency at 30,000 Feet

A passenger collapses mid-flight. One QR code scan gives the medical team allergies, medications, and conditions — instantly. No records request required.

Six different scenes. One root cause. HAELSA is built to put the individual — not the institution — in charge.

Chapter 02

The Idea

What if your health data worked like your bank account?

Nobody expects their bank to sell their transaction history without asking. Health data deserves the same basic respect. HAELSA is not a new institution to trust — it is a way to put the person the data is actually about back at the center of the decision.

Putting people in control of their own health data is not just a nice idea. It is the right thing to do. It is the future of healthcare.

You own it

Your health data belongs to you. Not a hospital. Not an app. Not a data broker.

It follows you

Your records move with you to any doctor or hospital, instead of staying locked in one place.

You say yes or no

Nothing leaves your file unless you clearly agree to it. Every time. No exceptions.

You can get paid

Share data for research on your terms, and you keep the majority of whatever value it creates.

Chapter 03

The App

One secure app. Your rules, from the first screen.

HAELSA is built to meet consumers and patients where they already are — on their phone. It meets the same standards hospitals already follow: HIPAA, GDPR, HL7 FHIR, and the 21st Century Cures Act. As regulators increasingly require documented data in medical AI training, HAELSA is already designed to meet that bar.

HAELSA™

Your Health Data. Your Rules. — Secure control, clear consent, and HIPAA-grade privacy. All in one app.

Complete Control Monetization Options Privacy First Strong Encryption Audit Logging
Prototype preview — not yet in customers' hands

A Self-Sovereign Container

Medical records, wearable data, and genetic data — gathered into one secure, lifelong vault that is yours, not the hospital's.

Granular Consent

Every permission is time-stamped and specific. See exactly who has access, and revoke it with one tap, anytime.

An Ethical Marketplace

Opt in to let research institutions use your data and keep most of the value it creates. Never a requirement for care.

A Monetization Dashboard

A transparent view of what your data has earned, who is using it, and for what. No fine print.

Privacy-Preserving AI

Patent-pending technology protects your identity even when your data supports research. Questions? privacy@haelsa.co

Built to Meet the Rules

Designed from day one around HIPAA, GDPR, HL7 FHIR, and the 21st Century Cures Act — built into real healthcare, not bolted on.

Chapter 04

The Proof

HAELSA is early. Here is exactly where things stand.

$10K
Self-funded to date. No outside investment yet.
50+
Stakeholder survey responses validating demand
Working Prototype
Built in-house by the team
Delaware C-Corp
Patent-pending since 2023, Continuation-in-Part filing in place

Pilot Impact Targets

To be measured against a baseline.

≤25%
Reduction in EHR documentation time
HL7 FHIR interoperability pilots
~$180
Earned per user per year from consented data
Measured per enrolled user
Measurable gains in consumer and patient data access
vs. baseline at pilot sites

These are pilot targets, not yet achieved results.

Chapter 05

The Opportunity

Healthy people are sitting on a goldmine, and might not even realize its size.

Every day, millions of people collect their own health data without thinking twice — steps, sleep, heart rate, blood sugar, blood oxygen, workouts — through wearables already on their wrist. Most of that data sits idle, or quietly feeds someone else's business model. But it is real, live, high-quality human data — exactly what researchers need to train and validate AI models. Exactly what synthetic data can never fully replace.

HAELSA connects the two sides directly: consumers choose to share, researchers get consented data that already meets FDA guidance. Nothing like this has existed before.

CapabilityHAELSAEHR / PortalsData Brokers
Consumer/Patient owns the dataYesNoNo
Consumer/Patient monetizes dataYesNoNo
Granular consent & revocationYesNoNo
AI data revocation ("unlearning")YesNoNo
Transparent marketplaceYesNoNo

Chapter 06

Who We Partner With

Consumers and patients are the center of this story. Real change happens when the organizations around them have a good reason to join in too.

Data Brokers

A Legitimate Path Forward

Trading health data without consent carries growing legal and reputational risk. HAELSA offers access to data that is consented, traceable, and ethically sourced — with a transparent revenue-sharing model built in.

Hospitals, ACOs, Physicians & Clinics

The Future of Healthcare, Not an Add-On

A patient's full history at check-in means fewer repeat tests, fewer missed details, and safer decisions — with less time chasing records and less exposure to preventable errors.

Researchers & Research Organizations

Real Data, Not a Guess

Real-time access to authentic, consented health data for training and validating AI models — a stronger foundation than synthetic data, built to meet the newest FDA guidance on AI in medicine.

Whether you are a data broker, hospital, ACO, clinician, medical office, or research organization — HAELSA wants to hear from you.

Partner with HAELSA →

Chapter 07

The Path Forward

HAELSA is a consumer-centric platform — not another institution asking for your trust by default. Every feature, every partnership, and every decision starts from the same place: You.

HAELSA looks forward to partnering with data brokers, hospitals, ACOs, physicians, clinicians, researchers, and research organizations on terms that keep the individual — not the institution — in charge.

HAELSA is revolutionary because it puts people in charge of their own health data. It is the future of healthcare.

Chapter 08

Join the Story

HAELSA has been self-funded and built one conversation at a time by a team with decades of experience inside the systems that failed patients. Reaching the first consumers, patients, and health systems requires early believers — people willing to back a mission before it becomes obvious.

Our public fundraising page is being finalized. These links reach our team directly.

Get Involved

The Future of Health Data Belongs to Everyone

Health data reform will not happen by accident. It happens when individuals, advocates, clinicians, and investors decide to demand something better — and back the people building it. HAELSA is that platform. Now is the moment to be part of it.

For Individuals & Advocates

Shape What We Build

A 5-minute survey gives you a direct voice in the future of your own health data.

Take the Survey →
For Supporters & Believers

Accelerate the Mission

Your early support — financial, relational, or vocal — directly shortens the timeline to putting HAELSA in the hands of people who need it.

Back This Mission →